Julian Kampfschulte is a 7-year-old boy with a big heart and an even bigger smile. He loves drawing, playing pretend, Legos, and video games. He loves playing with and annoying his two sisters, and he really loves his mom and dad. Little Julian should have the rest of his life ahead of him to grow and play.
However, his family received a devastating diagnosis—Julian has a rare genetic degenerative brain disease known as Adrenoleukodystrophy (ALD). The disease ravages his brain. His symptoms grow worse, including blindness, deafness, seizures, loss of muscle control, and progressive dementia. This relentless downward spiral will lead to permanent disability and death for Julian. It has already begun to affect his vision and he can no longer hear. All of this happened in only a few weeks.
In the coming months, Julian’s family needed a tremendous amount of support. There were day-to-day needs, medical bills, medical equipment to purchase, household needs, loss of work and memories to create. There is no way to know the length of time this little boy will be with his family, and what expenses will accumulate.
How did we help a family headed on a journey to say goodbye?
Our goal was to provide them with resources to help keep Julian as comfortable as possible and help the family enjoy and treasure their remaining time together; we created a GoFundMe page in which we raised $78,000, with a starting goal of $50,000. With all your aid and support, we were able to give the Kampfshulte family a blessing in order to cherish their time left together. Your generous donations went directly to pay bills, buy supplies, create memories, and help with lost wages over this overwhelmingly emotional time. Your donation continues to bless them along the way; thank you for keeping Julian Kampfschulte and his family in your prayers.