7 Year Old Julian Needs Our Help

| November 26, 2015 | Reply



Julian Kampfschulte is a 7-year-old boy with a big heart and an even bigger smile. He loves drawing, playing pretend, Legos, and video games. He loves playing with and annoying his two sisters, and he really loves his mom and dad. Little Julian should have the rest of his life ahead of him to grow and play.

However, his family received a devastating diagnosis—Julian has a rare genetic degenerative brain disease known as Adrenoleukodystrophy (ALD). The disease ravages his brain.  His symptoms grow worse, including blindness, deafness, seizures, loss of muscle control, and progressive dementia. This relentless downward spiral will lead to permanent disability and death for Julian.  It has already begun to affect his vision and he can no longer hear.  All of this has happened in only a few weeks.

In the coming months, Julian’s family will need a tremendous amount of support. There are day-to-day needs, medical bills, medical equipment to purchase, household needs, loss of work and memories to create. There is no way to know the length of time this little boy will be with his family, and what expenses will accumulate.

How do you help a family headed on a journey to say goodbye?

Our goal is to provide them with resources to help keep Julian as comfortable as possible and help the family enjoy and treasure their remaining time together. We are hoping there will be time to arrange a special reunion or vacation, so the family can create memories that they will hold in their hearts forever.  Your donation will bless them along the way and allow them to focus on the time they have left together. Thank you for keeping Julian Kampfschulte and his family in your prayers.

Thomas Richards Charity is a 501(c)3 non profit charity, fully tax deductible charity donation.  Your donation will go directly to pay bills, buy supplies, create memories and help with lost wages over this overwhelmingly emotional time.

Category: Things we've done

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